By Shira Johnson
Director of Development
We are excited to kick off our 2021 Planting the Seeds for Tomorrow Campaign!
This year, we are launching a new summer campaign called “Planting the Seeds for Tomorrow.” Nobody has more passion for accelerating PMS research, raising awareness, and providing support for each other than our families! We want to show researchers, specialists, and our donors how much our families are invested in PMSF. The Foundation relies on donations to operate each year and we want to grow to better meet your needs!
Our 2021 campaign is kicking off this summer with a goal of having our families give a gift directly to PMSF via our website or check. Phase 1 of the campaign will continue throughout the summer and focus on those closest to the Foundation: you!
Phase 2 kicks off in the Fall and will focus on expanding to families’ social networks/communities with Giving 22uesday as a huge part of the campaign.
What do we plan to fund with the money raised?
Here are just a few examples of what your donations will help fund:
Natural History Study – this is an ongoing longitudinal study of individuals with PMS. The age range for participants has now increased to 18 months and older and new families are being recruited to join the study. PMSF provides travel funds for families to reach one of the five study sites for their 3 visits over a 2 to the 3-year time span.
DataHub – we have reinvented the patient registry to be more user-friendly for families, researchers, and industry partners. More information will be coming soon about the DataHub – stay tuned!
Fellowship – we are funding a 2-year Young Investigator Fellowship to take a deeper look at issues affecting patients with PMS. The Foundation will play a key role in choosing the criteria for the Fellow. The individual selected will work in both the scientific and clinical areas, be mentored by experts, and their work should result in further publications.
2022 conference – We all felt the loss of the 2020 conference and we want to make sure 2022 makes up for the missed year!
To do all of the above and more, we need to raise over $175,000! We know we can do it with your support!
Every single dollar donated will make a difference. Please give at a level that is comfortable for your family. If every family gave just $5, we would raise over $12,500. Now imagine if each family can give $22, we would raise $55,000! The possibilities are endless if we can get enough families involved!
We can get to our goal with each family’s gift! Whether it’s $5 or $222 it all goes toward increasing our capacity to meet all PMS families’ needs! You can give via our donate button at www.PMSF.org or by check made out to PMSF and sent to: 8 Sorrento Drive, Osprey, FL 34229. For the greatest impact you can choose to make a reoccurring monthly gift!
What about the gifts I have given through Facebook, Phelan Lucky, etc.?
All your gifts are valued and appreciated! Thank you! For this campaign, we are tracking direct gifts to the Foundation so we can show families’ investment to PMSF. Most donations are given through Facebook, etc. we aren’t able to know who the individual donors are.
What is included in Phase 1?
We will be reaching out to families via social media and emails to let you know what PMSF is working on and why your donations are needed. We will be providing more detailed information about our upcoming projects including the DataHub, research studies, and the role our new Scientific Director will play in the Foundation. We are growing and want to show our families how!
What if I’m not a family member but want to give?
We would be honored to accept your donation! Please visit www.PMSF.org to go to our donation page.
How long will the campaign last?
The campaign will go through the end of 2021 with Phase 1 ending August 31st and Phase 2 beginning September 1st. Phase 2 is when we will reach out to our peers, extended family, and social networks to raise needed funds for PMSF. Giving 22uesday will be a great time to get your friends and family involved!
Thank you so much in advance for considering a donation. We can’t wait to see what this strong community can do when we all work together to plant the seeds of tomorrow!
Questions or comments: Reach out to shira@pmsf.org