November is Epilepsy Awareness Month
Epilepsy is one of the most common neurological disorders, impacting millions worldwide, including many in the Phelan-McDermid syndrome community. Approximately 50%…
PMSF 2024 Grant Award Recipients
In January 2023, PMSF launched its research grants program to fund highly motivated scientists studying Phelan-McDermid syndrome. Our goal was to…
“First 100 Days”
Welcome to the “First 100 Days of your membership with the Phelan-McDermid Syndrome Foundation.
Caregiver Support Groups
We are thrilled to continue our support group program for Phelan-McDermid syndrome caregivers.
Ideas for how to keep the family happy during a break from school or programs.
Winter Break Solutions
by: Carla D'Imperio, Family Support Specialist.We gathered your ideas to help make the most of breaks from school and programs.We know…
PHELAN LUCKY Sets Sights on $1 Million Goal
Over the past decade, more than 59,000 PHELAN LUCKY shirts have found homes in 33 countries across the globe. This has not only…
Katy & Sue’s Birthday
We are thrilled to invite you to join us in celebrating a momentous milestone - the 70th birthdays of two INCREDIBLE…
How are Phelan-McDermid Syndrome and Autism Related?
A large percentage (~75-80%) of people with a Phelan-McDermid syndrome diagnosis also have a diagnosis of autism spectrum disorder. This article…
“First 100 Days” Program Updates
We started the "First 100 Days" program a year ago and have had 100 US families join our membership in that time. We are so happy to be able to provide our new families with this intensive, personal, and differentiated support.
Neuropsychiatric Support Group Registration
Registration is open for our third support group topic, Coping With Neuropsychiatric Episodes. This support group will be open only to those caregivers in our community who have lost a child or adult with Phelan-McDermid syndrome.