Are you interested in taking the lead on planning a get-together for Phelan-McDermid syndrome families in your area of the United States? If you have an idea for a family gathering and you would like to plan it with support from our team, please fill out the form below and our Director of Family Support will reach out to you to help you get started.
Seizures are a big concern for families with children with Phelan-McDermid syndrome, but it's not always clear when or why they…
We are excited to release updates to our Pharmacologic Recommendations, which were recently finalized by our Phelan-McDermid Syndrome Neuropsychiatric Consultation Group…
Name: Denise CrodenTime Served on the Board: Since June 2021Board Role: PresidentDenise’s journey with PMSF began as an extension of her…
As we wrap up 2024, we’re thrilled to share a special gift with our PMSF community: access to all the recordings…
At the Phelan-McDermid Syndrome Foundation, we are committed to making resources accessible to all families in our community. That’s why we’re…
Please join us for our new Pathways Education Series of monthly webinars in 2025.
Epilepsy is one of the most common neurological disorders, impacting millions worldwide, including many in the Phelan-McDermid syndrome community. Approximately 50%…
In January 2023, PMSF launched its research grants program to fund highly motivated scientists studying Phelan-McDermid syndrome. Our goal was to…
Welcome to the “First 100 Days of your membership with the Phelan-McDermid Syndrome Foundation.
