Clinic and Research Visit Ready: New PMSF Resources for Families
By Lauren Schmitt, PhDDate February 25, 2026Everyday, our families are taking their loved ones to clinic appointments, research visits, or under…
Information about the Phelan-McDermid Syndrome Foundation (PMSF)
Why Nutrition Matters in Phelan-McDermid Syndrome
Why Nutrition Matters in Phelan-McDermid Syndrome By: Meagan Hutchinson, Science & Research Administrator, Phelan-McDermid Syndrome FoundationDecember 18, 2025Nutrition plays a critical…
Neuren’s Phase 3 NNZ-2591 Trial for Phelan-McDermid Syndrome is Now Active!
Neuren’s Phase 3 NNZ-2591 Trial for Phelan-McDermid Syndrome is Now Active! by: Lauren Schmitt, PhDDate: December 15, 2025The Phelan-McDermid Syndrome Foundation is…
Updates on the PMS Natural History Study
Updates on the PMS Natural History Study By: Lauren Schmitt, PhD, Chief Science Officer, Phelan-McDermid Syndrome FoundationDecember 11, 2025 What is…
PMSF NAMES ROBBIE BAKER AS CHIEF EXECUTIVE OFFICER
Phelan-McDermid Syndrome Foundation Names Robbie Baker as Chief Executive Officer by: Denise Croden, President, Phelan-McDermid Syndrome FoundationWe are excited to share…
Because no family should walk this path alone
Giving Tuesday is December 2nd and we have some exciting news!
We surpassed our Giving Tuesday match and raised $77K (exact total to be posted later). We ope you feel the appreciation…
Together We Are Mighty: Attending the 2025 NORD Breakthrough Summit
Together We Are Mighty: Attending the 2025 NORD Breakthrough Summit By: Meagan Hutchinson This week, I had the privilege of attending…
Driving Research Breakthroughs
Driving Research Breakthroughs Funding research, treatments, and cures for Phelan-McDermid SyndromeThe Phelan-McDermid Syndrome Foundation is proud to launch Driving Research Breakthroughs,…
SPACES Webinar Series Recap: Understanding Catatonia in Autism
SPACES Webinar Series Recap: Understanding Catatonia in Autism By Meagan HutchinsonPhelan-McDermid Syndrome Foundation proudly co-sponsored the six-part "Supporting People with Autism…
2025 Shannon O’Boyle Memorial Grant Awardee
We have exciting news to share with our Phelan-McDermid syndrome community! This year’s PMSF research grant will help drive groundbreaking science…
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